THE DAY WAS LARGE
Month two of our new lives. The apartment is unbelievable, best I have ever lived in. It is brand new, which has a lot to do with the loving of it I'm sure. Every other dwelling I have resided at has been very very very lived in. Very.

One of my daughters is singing along to her game-cube game Bratz Rock Angels. It's the 17th time I've gotten to hear the background music. These are really the lyrics -'Oh Yeah! Blah blah blah, I can't hear you' Teaching respect I guess. Lying on the super lush brand new carpet (love new stuff smell) in front the computer, she calls me to come look-over at what she has created. It is a printout. Something with a huge head, more makeup than Miss Piggy (one of my heroes) and stick legs running around the screen in HUGE platform sandals. This Bratz is looking for Chloe Bratz because "they" have a magazine deadline. (?) "I made it for you Mom" 'Oh, thank you! It is awesome." (I subscribe to the credo - 'take any gift a child offers you' followed closely by ' make sure the egg syrup and carrot burrito is in the bin for pick up Thursday am. hopefully before she realizes I'm not saving it for a special special day.) My youngest daughter is 8. She likes video games and get to play them on the weekends She could be playing 'Godzilla destroy all monsters Malay.' But she isn't, she plays Bratz. The Brazt are un violent, just tragically hip, (boring).

My son is 16, but on Myspace he is 28. Leaning on a Billiards table. In a ripped muscle t-shirt. He gave his sisters 'Godzilla destroy all monsters Malay'. He lives with his father and his fathers husband in another state. I am not happy about it, but you gotta pick your battles. Today was the last day of 'Fall Break' which was a four day weekend. Thank you Chris Columbus. We wrapped up the festivities with soft tacos, and a tiny movie the girls made on the iMac to email to their dad. Dad lives 15:45 miles away. With his new wife. The last girl he cheated on me with. And so now we are in Texas, close to some of my family. Breathtakingly beautiful skies. Here comes the oh so casual topic shift to the MS part of this. I now live very close Texas Neurology and to Dr. Phillips, the man in charge of the Higher Titer Tysabri trial I just finished up.
After starting to talk publicly about MS a lot I was asked if I thought to write about it so other people could discuss some answers , get inspiration. And it might stop the impromptu Q & A sessions I would instigate at the movie theater before the film started, weddings or graduations. where ever I found a group that couldn't walk out on me. Talking about it has helped a lot. The emotional support was not forthcoming at home. My boyfriend at the time responded this way; told me a tale about someone his father worked with who had MS. She turned very mean and then she died. Perked me right up, it did. I still stayed with the ego driven bag of cheer long enough to have 2 children with him. In hindsight. I wish I had foresight. Regardless, I've got it (MS; clearly not foresight). Everyones progression with the disease is different, but there are enough specific symptoms that we can maybe help one anther with. Hope. Or maybe it's therapy just for me. Either way, the wish is someone is getting some help from it all. When it was REVEALED (I equate it to coming out possibly) at work that I had MS suddenly I was not called for jobs anymore. People at work treated me as though I was close to dying. Great lack of information I think. It was clear that you would catch my MS if we spent any casual time together. People don't know what to say, so they just say nothing. My life is about MS, comedy clubs, MS, treatments. life, MS, what works and what doesn't. Glasses. Stitches, The comedy club which is amazing. So much fun. I take it for granted that I would be around funny people forever. The Perch lived for 12 years, since 1994, and would still be going on if circumstances had been different. The people who were involved are awesomely talented, wicked funny and off the chart smart. The shows consisted of 12-15 sketches, 2-3 parody songs. We were joined by great bands, we wrote our own stuff, no one could censor us but us. The Perch sketch comedy group won a ton of awards, a bazillion friends / fans, kind of a cult following. It became a host for unbookable comics. The guys with the poopy mouths who don't stay dressed and take shots at God and all. We're on relocation hiatus for now. In this blog, obviously I'm new to this outlet which rocks, I aim to include links for everything MS; therapies, where to go for answers. I am headed down the stem cell road next. However, first I'm doing Webkidz Bathtub Bart Battles with my 9 year old daughter. I highly recommend Web Kinz. It bridged gaps. Bathtub Barts' is sort-of like the game battleship. Opponents are on different computers. Anyone can challenge another webkinz and play. Even in another country. With Webkinz I could engineer my girls being in more contact with their dad and he bought a pig he calls chubs. 'Nuf said. Anyway in this game you and your cuddly cute webkinz opponent place your Schooners and Pirates style ships around in the bath tub, and take turns blowing the crud out of each others boats. Last pet with boats still afloat wins. Webkinz cash. It's always about the money. Now my pet Ruby is going to garden for a minute then go to Bathtub Barts to obliterate my daughter's pet Mimi, Dumb fluffy white puppy. Take no prisoners. arg.